I'm well aware that I need to change my Valentine's themed background on our blog...however, my house still has Christmas and Valentine's decorations up. As we are approaching April soon, I am realizing not only has February slipped away from me, March seems to be blending in also. We came home from the hospital on March 17th, St. Patti's Day, yeah! I thought the next few weeks would be difficult with him waking up at midnight and four (when they usually take his vitals at the hospital). That is what has happened every time we have come home from the hospital. First, in October, it only took 2 weeks to get him to sleep through the night. But then in December, it took two months. This time, he slept through the night that night! I didn't sleep that night, though, because I was nervous or excited, I don't know. Last night he woke up screaming bloody murder. We think he was having a nightmare though. But needless to say we are so happy to be home!
We are due to go back on Wednesday, though. Weston has had bleeding left over from his old liver. So they will scope and inject chemicals to scar off the veins in his throat. To explain this, the blood is still backed up from his old liver and so some of his veins are still swollen. On average, they have to do this 5-7 times. We've already done it twice. We will have to stay at least one night for the procedure.
I give him medication 6 times a day, but only orally. And a nurse comes three times a week to draw blood to check the level of his anti-rejection medication. But we could not be happier to be home. So here are the last 5 weeks of our lives!
Pre-Transplant
Happy as can be all the way up to his transplant, which really is miraculous in and of itself considering he hadn't eaten in 9 hours!


Mad Computer Skills... WEston loves this website: http://disney.go.com/characters/pooh/index.html It is Winnie the Pooh and he loves the funny hunny tree. The two bandaids on his arms are exactly why Weston has the picc line now...so he doesn't have to get poked three times a week to draw blood.

And some pre-transplant comparison pics for the size of his belly and his coloring. Don't shoot! It's just a camera Weston.


3 comments:
Horray for Weston! So glad to hear y'all are home! I can't even imagine what the 3 of you have been going through! I look up to you so much and admire you in so many different ways!
He looks like such a sweet and happy little guy even with all that he has been through. He is adorable!!
I'm so glad you guys are all home now. What a strong little boy you have!! I love that picture of him on the computer, so cute! I love your blog background too. Let me know if it's a good time, and we can come visit you guys in the next week or so. Let me know if you need anything!! We love you guys!
John, Amber, Jaxon, & Duke :)
Welcome home! I'm glad to hear everything is going good. You guys are amazing! Weston is too cute! His scar healed really well! Take care!
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